ALFIE'S STORY
Alfie Johnson’s story is one of great sadness and of hope. Through the traumatic birth he endured, the countless hospital procedures and the daily discomfort his condition brought, Alfie Johnson was a young boy who was not only a fighter, but an inspiration to so many, proving that through darkness, light can shine and that there is always hope.
Alfie Johnson was born on Remembrance Day in 2007. He was born lifeless and blue after what was thought to be a ‘Low Risk’ natural birth.
Alfie was taken to the Specialist Care Baby Unit for observation. Hours after his birth, his parents were given the devastating news that Alfie had suffered brain damage, because of oxygen starvation.
After the euphoria of seeing their first child born, this quickly turned to utter devastation. Their introduction to becoming parents for the first time was heart-breaking. After spending 3 weeks in hospital, including Intensive Care and High-Dependency unit's, Alfie was finally allowed to go home.
As a result of his injuries, Alfie was diagnosed with Cerebral Palsy, and now suffers with a number of complex conditions and is reliant on a variety of anti-convulsing drugs, to help with his epilepsy, and anti-spasmodic drugs to help with painful muscular spasms. He also suffers with hip-dysplasia, scoliosis, cortical-blindness, reflux and has poor bone-density. He will require specialist 24-hour care for the rest of his life as a direct result of the injuries he sustained whilst in the care of the hospital.
Wanting answers to how their son suffered such terrible injuries, his parents requested an investigation by the hospital to look into why their precious boy had been left so severely disabled in their care. Their initial response was that they did everything right and no further investigation was to take place. Not satisfied with the hospital’s response, Alfie’s parents took legal action against them. After a lengthy investigation, lasting over 8 years, the hospital finally admitted that their negligence had indeed led to Alfie’s life-limiting injuries.
Alfie’s future was finally secured because of the legal case.
Sadly on Sunday 26th November 2023, our beautiful boy, Alfie John Arthur Johnson, sadly passed away following a brief respiratory illness. Despite the loving care of Birmingham Children's Hospital, Alfie sadly could not recover.
At 22:46pm, Alfie passed away at Acorns Children's Hospice, in Selly Oak, Birmingham, surrounded by his loving family. We would like to thank all the nurses, doctors and consultants at Birmingham Children's Hospital, and the wonderful, loving care Alfie and his family received from all the amazing staff at Acorns Children's Hospice.
A JustGiving page has been set up in Alfie's Memory, in support of Acorns Children's Hospice. If you are able to support us in tribute to Alfie, please click on the button at the top of this page. Thank you.