Funding a wheelchair for a child with cerebral palsy
Eden is a lively 9 year old girl from Wordsley in Stourbridge, who suffers from a form of cerebral palsy called spastic diplegia. This is a chronic neuromuscular condition that causes stiffness in the leg muscles and means that she is unable to walk and suffers ongoing pain. In July 2015 Eden went through a procedure called selective dorsal rhizotomy (SDR), which is an operation used to improve muscle stiffness and provide more movement.
Even so Eden still needs a wheelchair to get around. She had been provided with an NHS wheelchair but it was so heavy and cumbersome that she was unable to move around with help from an adult. This obviously reduced her independence and meant she couldn’t play with her friends in the school playground or even move around her house and garden.
Eden’s mum and dad wanted to buy her a lightweight wheelchair but like a lot of specialist equipment they are very expensive. Fortunately they found out about the Friends of Alfie Johnson and put in an application for a grant toward the purchase of a wheelchair.
We were delighted to be able to respond very quickly to this request and provide a big top-up to the funds that Eden’s parents had already raised.
Taking a look at the accompanying videos shows just what a difference your support makes to the lives of children like Eden. You have given her mobility, independence and a boost to her self-confidence.
The Friends of Alfie Johnson are so grateful to all of the fundraisers and donors who help us out. We are also very appreciative to the people who refer family, friends, patients or just acquaintances to us.
If you know children who need help or people who work with those children please spread the word.
The Friends of Alfie Johnson XXX