Hello everyone. I'm Alfie
Hope you like my new website, I think it looks great.
I'd like to say a BIG hello to everyone who has come to say hi. It's been a very busy few weeks. So many people are doing wonderful things to help me. I am so grateful to them all. I will be doing a monthly blog here in 'My World' to keep everyone up to date with my progress.
At the moment I'm very poorly with a cold and chest infection that keeps coming back. But my Mommy & Daddy..and Max the dog, are taking good care of me. Unfortunately, I have had the last two MRI scans cancelled due to my naughty cold :( But..hopefully I will be well enough next month to have another one, so that the doctors can have a look at my poorly head :)
I'm very excited about the Summer Ball in June, it will be such a fantastic night, even 'Tom Jones' is coming to sing for me, but my Daddy says he likes to be called 'Simon'.Unfortunately for me, I'll only be 18 months old then and tucked up in bed with a bottle....of milk of cause, but i hope everyone who is able to attend has a wonderful time.
Wow!! Have you seen my picture with the fire fighters of White Watch at Brierley Hill Fire Station? They are great!! For the rest of this year they are going to raise money for me, to help with special equipment I need at my home. A BIG thank you to them all. They will need lots of help though. On Sunday 1st and 8th of March they are holding a charity car wash for me at Brierley Hill fire station, but need lots of help just incase they need to put out some fires. So come on everybody, grab your wellies and get wet. Yippee!!
Well folks, it's almost my bedtime so i need to say bye bye...for now. Please visit me again soon.
Lots and lots of love
Alfie xxxxx
Hell
All my love
Alfie xxxx
Love
Alfie xxx
Hello…me again
So much has been happening in March, I don’t know where to start. The car washes at Brierley Hill Fire Station went really well. They raised £500 for me to help buy special equipment I need. White Watch has been brilliant, so to have all my friends and family who helped the fire fighters clean all those dirty cars. And a Big Big thank you to everyone who bought their cars to the fire station to get a good clean, some were very dirty.
There are still lots of ticket left for my Summer Ball in June, so please call my friends to get your ticket before they are gone. I managed to get over my cold so the doctors at the Hospital could look at my poorly head, and I had my MRI scan on the 9th March. My special doctor called my Mummy and Daddy this week and spoke to them about what they found. Daddy told me that my brain is very poorly, and has been hurt quite badly and I will need to be looked after all the time, even when I’m all grown up. But I have the best Mummy and Daddy in the world and I know they will take good care of me, so will my family and friends, so I am quite lucky really.
There is lots and lots of things happening in April, you can find out about everything on the news and events page on my website. So please have a look J.
Well, almost bedtime time, PJ’s need to go on, and there is a lovely bottle of milk waiting for me. Thank you for coming to visit me again, chat soon.
All my love
Alfie xxxx
It's All Go
Wow!! April has been such a busy month, I'd like to say a big big big big THANK YOU to everyone who took part in all the events this month. I am so grateful to each and everyone of you. BIG CUDDLE-HUGS TO YOU ALL XXX
BMW in Four Oaks, Sutton Coldfield climbed a BIG mountain called 'Mt Snowdon' to raise money for me, thank you all so much. I hope everyone got down safely.
My Daddy tried to play football at Sutton Town FC against Telford Town FC but had a poorly leg so he could only play for 5 mins. He did nearly score though, but the naughty goal keeper saved it :( The event raised £350 and the Chairman gave me a wonderful solid silver necklace.Thank you.
Marks & Spencer's let me friends bag-pack for their wonderful customers. It was a fab day raising £433. Thanks so much.
My Daddy went on the radio on the 26th April and spoke to a great bloke called Professor Carl Chinn on BBC Radio WM 95.6FM. Wow!! I've never met a real-life Professor before. My Daddy spoke with Carl about me and The Friends of Alfie Johnson and all the wonderful things that are happening in my life. BIG thank you to Carl.
Daddy has also started to decorate my new bedroom which will become a 'Sensory-Room'. Wow!! I'm so excited, I will keep you updated with how he is doing, and put some pictures in my gallery.
Thank you all for visiting again. It's only 6 weeks till my BIG special night at The Copthorne Hotel. YIPPEE!!
Well I'm off for a cuddle with Mummy, Daddy's asleep now. I think I kept him up too late last night. Oops!!
Love
Alfie xxx
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